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The Tuberous Sclerosis Alliance is seeking volunteers to serve as champions for our cause. We need your help to facilitate local connections for those affected by TSC, raise revenue and increase awareness while supporting the mission of our organization.

Volunteers are needed for:

  • TSC Connect – The TS Alliance's TSC Connect (formerly the Support Network and Matching Program) is an organized partnership of individuals whose lives have been affected by tuberous sclerosis complex (TSC). The volunteers are committed to offering support and sharing their experiences with others who are faced with the challenges of tuberous sclerosis complex. Across the nation, TSC Connect is providing the latest medical information, education and support to those individuals who are seeking understanding about the genetic disorder and offering them words of encouragement and empowerment. Volunteers come to the network with a wealth of knowledge, awareness and experiences.  TSC Connect is designed to connect individuals either by specific geographical area, manifestations, or age of TSC individual and lets volunteers choose the issues they have personal experience with and are willing to discuss with others. TSC Connect is supported wholly by the Director of Advocacy and Education.
  • Government Advocacy – Create greater research dollars by contacting and meeting with your US Senators and Representatives.
  • Community Fund Raising – Organize a special event in your local community to raise funds for the TS Alliance.
  • Community Alliances – Join one of our volunteer branches in 33 locations across the United States. Community Alliances host educational meetings, organize special events, raise awareness and serve as a resource in their communities.

The TS Alliance will support your efforts by providing materials, resources and guidance. Become a champion and join our national network of local connections to better serve all those affected by TSC.

Sign Up Online Today!

If you have any questions, please contact Christen Bell at 800-225-6872 or

Yes, I want to be a TSC Champion! Please select the volunteer opportunities that interest you.

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