Skip Navigation Links
 
Text Size
 
 

Current Events

February 2016

2/16/2016--Adults with TSC Informational Call - Nationwide
Are you an independent or semi-independent adult with TSC? If so, please join us for a free informational call on "Depression."  To participate in any of the following free informational calls, use the toll-free call in number: 1-866-613-5223 then enter access code: 4334003#.  Each call's length is one hour. Please note the time zones and start times: 8:00 pm Eastern, 7:00 pm Central, 6:00 pm Mountain, 5:00 pm Pacific. If you have questions or would like to receive handouts (if available) before each call, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.

March 2016

3/6/2016--23rd Annual Cookin' Up a Cure - South Milwaukee, WI
Join Pam and Rita Sztukowski as they host the 23rd Annual Cookin Up a Cure, a Pampered Chef auction to benefit the TS Alliance. Registration begins at 12:00 pm at Knights of Columbus, 732 Badger Ave., South Milwaukee, WI 53172. Please RSVP to Pam at 414-281-6383 or pamchef@wi.rr.com.

3/18/2016--Adults with TSC Informational Call - Nationwide
Are you an independent or semi-independent adult with TSC? If so, please join us for a free informational call on "Your Needs and Concerns."  To participate in any of the following free informational calls, use the toll-free call in number: 1-866-613-5223 then enter access code: 4334003#.  Each call's length is one hour. Please note the time zones and start times: 8:00 pm Eastern, 7:00 pm Central, 6:00 pm Mountain, 5:00 pm Pacific. If you have questions or would like to receive handouts (if available) before each call, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.

April 2016

4/10/2016--15th Annual Comedy for a Cure - Universal Studios, CA
Join the TS Alliance for our 15th Annual Comedy for a Cure at The Globe Theater, Universal Studios, CA.  For more information, visit www.ComedyforaCure.org.

4/16/2016--Regional TSC & LAM Conference - Nashville, TN
This one-day conference will provide educational outreach, information on the latest treatment and testing options, basic and transitional research updates, and support options for both TSC and LAM. Follow this link for more information.

4/23/2016--LIDS Step Forward to Cure TSC – Mountain Brook, AL

Join the TS Alliance of Atlanta/N. Georgia for the annual LIDS Step Forward to Cure TSC to be held at 50 Oak St. (Field directly across from the Emmet O’Neal Library) in Mountain Brook, AL. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Margaret Cox at margaretgcox@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

4/23/2016--LIDS Step Forward to Cure TSC – Scottsdale, AZ

Join the TS Alliance of Arizona for the annual LIDS Step Forward to Cure TSC to be held at Eldorado Park in Scottsdale, AZ. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Debora Moritz at deboramoritz@hotmail.com. For more details, visit www.StepForwardtoCureTSC.org.

4/23/2016--LIDS Step Forward to Cure TSC – Breaux Bridge, LA

Join the TS Alliance of the Delta Region for the annual LIDS Step Forward to Cure TSC to be held at Parc Hardy Park in Breaux Bridge, LA. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please Katie Christensen at cajuncuties@outlook.com . For more details, visit www.StepForwardtoCureTSC.org.

May 2016

5/1/2016--LIDS Step Forward to Cure TSC – Liverpool, NY

Join the TS Alliance of New York and New Jersey for the annual LIDS Step Forward to Cure TSC to be held at  Onondaga Lake Park c/o Willow Bay Shelter in Liverpool, NY.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Bridgett Langstaff at bclangstaff@mac.com. For more details, visit www.StepForwardtoCureTSC.org.

5/7/2016--LIDS Step Forward to Cure TSC – Wyomissing, PA

Join the TS Alliance of the Delaware/Lehigh Valley for the annual LIDS Step Forward to Cure TSC to be held at Gring’s Mill in Wyomissing, PA. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Shelly Meitzler at momof2withtsc@gmail.com or Bridget Simmons at b_simmons@comcast.net. For more details, visit www.StepForwardtoCureTSC.org.

5/14/2016--LIDS Step Forward to Cure TSC – Marietta, GA

Join the TS Alliance of Atlanta/N. Georgia for the annual LIDS Step Forward to Cure TSC to be held at Marietta Square in Marietta, GA. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Sharon Carpenter at shurnlou@comcast.net. For more details, visit www.StepForwardtoCureTSC.org

5/14/2016--LIDS Step Forward to Cure TSC – Galesburg, IL

Join the TS Alliance of Greater Chicago for the annual LIDS Step Forward to Cure TSC to be held at Lake Storey Recreational Area in Galesburg, IL. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Karen Johnson Wenger at Jkarjo@yahoo.com. For more details, visitwww.StepForwardtoCureTSC.org.

5/14/2016--LIDS Step Forward to Cure TSC – Frisco, TX

Join the TS Alliance of the Dallas/Ft. Worth Area for the annual LIDS Step Forward to Cure TSC to be held at Frisco Commons Park in Frisco, TX. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Joy Graydon at jgraydon10@hotmail.com. For more details, visit www.StepForwardtoCureTSC.org.

5/14/2016--LIDS Step Forward to Cure TSC – West Bend, WI

Join the TS Alliance of Wisconsin for the annual Step Forward to Cure TSC to be held at Regner Park, Centennial Shelter in West Bend, WI. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Kristin DeGueme at kristin.degueme@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

5/15/2016--LIDS Step Forward to Cure TSC – South Windsor, CT

Join the TS Alliance of Connecticut for the annual LIDS Step Forward to Cure TSC to be held at Rotary Pavilion at Sand Hill/Nevers Park in South Windsor, CT. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Rebecca Thereault at rebecca.flor@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

5/15/2016--LIDS Step Forward to Cure TSC National Walk on the Mall – Washington, DC

Join the TS Alliance of DC Metro for the annual LIDS Step Forward to Cure TSC National Walk on the Mall to be held at the National Sylvan Theater in Washington, DC. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Brooke Carpenter at brooke_carpenter@hotmail.com. For more details, visit www.StepForwardtoCureTSC.org.

5/15/2016--LIDS Step Forward to Cure TSC – Denver, CO
Join the TS Alliance of the Rocky Mountain Region for the annual LIDS Step Forward to Cure TSC to be held at Central Park in Denver, CO. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Alison Brainard at alisonbrainard@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

5/21/2016--LIDS Step Forward to Cure TSC – Long Beach, CA

Join the TS Alliance of Southern California for the annual LIDS Step Forward to Cure TSC to be held at El Dorado Park – East in Long Beach, CA. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Barbara O’Neill at zin.wine@verizon.net. For more details, visit www.StepForwardtoCureTSC.org.

5/21/2016--LIDS Step Forward to Cure TSC – Fishers, IN

Join the TS Alliance of Indiana for the annual LIDS Step Forward to Cure TSC to be held at Billericay Park in Fishers, IN. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Pat Schmutte at pjschmutte@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

June 2016

6/4/2016--LIDS Step Forward to Cure TSC – Libertyville, IL

Join the TS Alliance of Greater Chicago for the annual LIDS Step Forward to Cure TSC to be held at Libertyville High School in Libertyville, IL. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Geri Greenberg at tscgreaterchicago@yahoo.com. For more details, visit www.StepForwardtoCureTSC.org.

6/5/2016--LIDS Step Forward to Cure TSC – Roseville, MN

Join the TS Alliance of the Upper Midwest for the annual LIDS Step Forward to Cure TSC to be held at Central Park – Jaycees Shelter in St. Paul, MN. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Jody Prudhomme at jody_prudhomme@yahoo.com. For more details, visit www.StepForwardtoCureTSC.org.

6/11/2016--Regional TSC & LAM Conference - Seattle, WA
This one-day conference will provide educational outreach, information on the latest treatment and testing options, basic and transitional research updates, and support options for both TSC and LAM. Follow this link for more information.

6/11/2016--LIDS Step Forward to Cure TSC – Lansing, MI

Join the TS Alliance of Michigan for the annual LIDS Step Forward to Cure TSC to be held at Granger Meadows Park – Pavilion 1 in Lansing, MI. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Treasa Bolger-Dunlap at mtbolger@comcast.net. For more details, visit www.StepForwardtoCureTSC.org.

6/25/2016--LIDS Step Forward to Cure TSC – Seattle, WA

Join the TS Alliance of the Pacific Northwest for the annual LIDS Step Forward to Cure TSC to be held at Warren G. Magnuson, Shelter 2 in Seattle, WA. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Devon McCollum at devonmccollum@yahoo.com or Gloria Triebenbach at batnblueyes2@aol.com. For more details, visit www.StepForwardtoCureTSC.org.

November 2016

11/5/2016--Regional TSC & LAM Conference - Cleveland, OH
This one-day conference will provide educational outreach, information on the latest treatment and testing options, basic and transitional research updates, and support options for both TSC and LAM. Follow this link for more information.


 
  Skip Navigation Links
Find a Local Branch
Find a Global Alliance
Become a Volunteer
Become a Member
Government Outreach
Connect With Others
Ways to Give
Your Impact
Facebook YouTube Google+ Twitter TSAlliance Support Linkedin Instagram
 
Make a Donation to the Tuberous Sclerosis Alliance
  calendar
 
 
   



Unlock the Cure: The Tipping Point in the Battle Against TSC
Tuberous Sclerosis Alliance Overview
La Esclerosis Tuberosa (Spanish Intro to TSC)
Infantile Spasms & TSC: A Devastating Diagnosis
Questions & Answers About the TS Alliance

ABOUT TSC
What is TSC?
How is TSC Diagnosed?
Signs of TSC
Genetics of TSC

INDIVIDUALS & FAMILIES
Living with TSC
Family Support
Adult Resources

TSC Connect
Brochures & Booklets
Information Sheets
Life Stages Guides & Personal Journals

Perspective Magazine Archives
TSC Clinics

RESEARCHERS
TS Alliance Grants Program
Other TSC Funding Opportunities
TSC Alert Newsletter Archives
Clinical Trials
TSC Natural History Database
Research Resources
International Scientific Advisory Board

Tuberous Sclerosis Alliance Online CommunityTuberous Sclerosis Alliance Support Community