Skip Navigation Links
 
Text Size
 
 

Current Events

July 2016

7/30/2016--2nd Annual Automobiles for a Cause - Indianapolis, IN
Plan now to attend the 2nd Annual Automobiles for a Cause, presented by Indiana Oxygen Company to benefit the TS Alliance. All years trucks, cars and motorcycles are welcome to register in this automobile show to raise awareness of tuberous sclerosis complex. For more information, download the event flyer and registration form.

August 2016

8/7/2016--Southern California Picnic - Irvine, CA
Join the TS Alliance of Southern California for the annual summer picnic from 12-3 p.m. at Mason Regional Park, Shelter Area #1 in Irvine, CA.  RSVP by August 1 to Tiffani Goff at tiffanigoff@aol.com or 949-422-7877 with how many attending and what dish or dessert you plan to bring.

September 2016

9/8/2016--Adults with TSC Topic Call - Nationwide
If you're an independent or semi-independent adult with TSC, plan to join us for this free one-hour call, entitled "Kidney Issues in TSC," presented by Dr. John Bissler, at 8 pm Eastern, 7 pm Central, 6 pm Mountain, 5 pm Pacific.  To participate, simply use the toll-free call in number: 1-866-613-5223 then enter access code: 4334003#. Please note the time zones and start times listed above.  If you have questions or would like to receive handouts (if available) before each call, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.

9/10/2016--LIDS Step Forward to Cure TSC – Gardner, KS

Join the TS Alliance of Greater Kansas City for the annual Step Forward to Cure TSC to be held at Celebration Park in Gardner, KS. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Amy Dublinske at dublinske@sbcglobal.net. For more details, visit www.StepForwardtoCureTSC.org.

9/10/2016--LIDS Step Forward to Cure TSC – St. Louis, MO
Join the TS Alliance of St. Louis for the annual Step Forward to Cure TSC to be held at Cliff Cave Park in St. Louis, MO. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Gwen Montaigne at tawanda1951@yahoo.com. For more details, visit www.StepForwardtoCureTSC.org.

9/16/2016--2016 Vancouver TSC Educational Conference - Canada
Tuberous Sclerosis Canada Sclérose Tubéreuse (TS Canada ST) in partnership with the TSC Clinic at BC Children’s Hospital is pleased to host the 2016 family education conference in Vancouver for those with tuberous sclerosis complex (TSC), their families and their caregivers. This one and a half day conference will feature leading researchers and clinicians specializing in TSC (both local and from abroad) with topics relating to the latest research, diagnosis and treatment of TSC in both pediatrics and adults. Download the conference flyer and register online.

9/17/2016--LIDS Step Forward to Cure TSC – Pennington, NJ

Join the TS Alliance of New Jersey for the annual Step Forward to Cure TSC to be held at Rosedale Park in Pennington, NJ.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Tresha Bisang at jersey4424@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

9/24/2016--LIDS Step Forward to Cure TSC – Auburndale, MA

Join the TS Alliance of New England for the annual Step Forward to Cure TSC to be held at Auburndale Park in Auburndale, MA.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Stacie Verrill at kscverrill@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

October 2016

10/1/2016--LIDS Step Forward to Cure TSC – Hilton Head Island, SC

Join the TS Alliance of South Carolina for the annual Step Forward to Cure TSC to be held at Jarvis Creek Park, Hilton Head Island, SC.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Amy Bredeson at acbredeson@yahoo.com. For more details, visit www.StepForwardtoCureTSC.org.

10/20/2016--Adults with TSC Topic Call - Nationwide
If you're an independent or semi-independent adult with TSC, plan to join us for this free one-hour call, entitled "Epilepsy in Adults with TSC," presented by Dr. Orrin Devinsky, at 8 pm Eastern, 7 pm Central, 6 pm Mountain, 5 pm Pacific.  To participate, simply use the toll-free call in number: 1-866-613-5223 then enter access code: 4334003#. Please note the time zones and start times listed above.  If you have questions or would like to receive handouts (if available) before each call, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.

November 2016

11/5/2016--Regional TSC & LAM Conference - Cleveland, OH
This one-day conference will provide educational outreach, information on the latest treatment and testing options, basic and transitional research updates, and support options for both TSC and LAM. Follow this link for more information.

11/16/2016--Adults with TSC Topic Call - Nationwide
If you're an independent or semi-independent adult with TSC, plan to join us for this free one-hour call, entitled "Open Forum," hosted by members of the Adult Task Force, at 8 pm Eastern, 7 pm Central, 6 pm Mountain, 5 pm Pacific.  To participate, simply use the toll-free call in number: 1-866-613-5223 then enter access code: 4334003#. Please note the time zones and start times listed above.  If you have questions or would like to receive handouts (if available) before each call, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.


 
  Skip Navigation Links
Find a Local Branch
Find a Global Alliance
Become a Volunteer
Become a Member
Government Outreach
Connect With Others
Ways to Give
Your Impact
Facebook YouTube Google+ Twitter TSAlliance Support Linkedin Instagram
 
Make a Donation to the Tuberous Sclerosis Alliance
  calendar
 
 
   



Your Journey with TSC: You Are Not Alone
Tuberous Sclerosis Alliance Overview
La Esclerosis Tuberosa (Spanish Intro to TSC)
Unlock the Cure: The Tipping Point in the Battle Against TSC

ABOUT TSC
What is TSC?
How is TSC Diagnosed?
Signs of TSC
Genetics of TSC

INDIVIDUALS & FAMILIES
Living with TSC
Family Support
Adult Resources

TSC Connect
Brochures & Booklets
Information Sheets
Life Stages Guides & Personal Journals

Perspective Magazine Archives
TSC Clinics

RESEARCHERS
TS Alliance Grants Program
Other TSC Funding Opportunities
TSC Alert Newsletter Archives
Clinical Trials
TSC Natural History Database
Research Resources
International Scientific Advisory Board

Tuberous Sclerosis Alliance Online CommunityTuberous Sclerosis Alliance Support Community