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Current Events

June 2015

6/27/2015--Regional TSC Conference - Stanford, CA
Join the TS Alliance of Northern California for a Regional TSC Conference at the Northern California TSC Clinic at Lucille Packard Children’s Hospital, Stanford Hospital and Clinics.  For more information and to register, please visit www.tsalliance.org/conferences.

6/27/2015--Community Picnic - Ashland, KY
Join the TS Alliance from noon to 2 pm for a community picnic at Ashland Community Park in Ashland, KY. The event will be located near the playground by the 17th Street entrance. There will be blue balloons to help you find us.  You'll get to know other individuals and families affected by TSC! We will provide hot dogs, chips, fruit and drinks. Please bring a side dish or dessert to share with the group.  RSVP to Tammy via text or call at 606-571-3882 or email at tammykouns@gmail.com. Or RSVP to Melissa via text or call to 740-961-1179.

6/27/2015--Community Gathering - Lincoln, NE
Join the TS Alliance of the Heartland at the Golden Corral in Lincoln, NE! The group will meet at 11:30 a.m. RSVP to Beth at bmomb4sons@aol.com.

July 2015

7/11/2015--Picnic Gathering - Seattle, WA
Join the TS Alliance of the Pacific Northwest for a gathering at Seattle's Woodland Park from 11 a.m. – 2 p.m. Main course will be provided; please bring a side dish or dessert to share. RSVP to Devon at devonmccollum@yahoo.com or 253-561-1822.

7/12/2015--Summer Picnic - Minneapolis, MN
Join the TS Alliance of the Upper Midwest for a summer picnic hosted by Community Alliance Chair Kari Ihle! The picnic starts at 4 p.m. Please bring a dish to share with the group. RSVP to Kari at kaihle@msn.com or 612-281-5759.

7/12/2015--Educational Meeting - Ball Ground, GA
Join the TS Alliance of Atlanta/North Georgia for “Friends and Family CPR” at 2 p.m. in Ball Ground, GA. RSVP for complete address to Becky Gaunt at pin.the.map@gmail.com or 404-295-5738.

7/18/2015--Automobiles for a Cause: Car Show - Indianapolis, IN
Indiana Oxygen Company presents Automobiles for a Cause: Car Show. Join the Indiana Oxygen Company as they celebrate their 100th anniversary by giving back. All proceeds will go to the TS Alliance from this great event. You can see more information by clicking here or call Ty Guernsey at 317-418-7998. Come on out and enjoy a great day of cars, hot dogs, drinks, auction, raffle and more!  Download the registration form for submission.

7/18/2015--Strikeout TSC - Queensbury, NY
The second annual "Strikeout TSC" coed softball tournament will be held on Saturday, July 18, 2015 in Queensbury, NY. This fundraiser is in honor of two year old Nol, who was diagnosed with TSC at birth. All proceeds will be donated to the TS Alliance and to Nola to help cover medical costs. Buy something hot off the grill, check out the amazing raffle baskets, and watch the skillful softball players battle for the title of tournament champion. For further information, to make a donation, or to register your team please contact Laura Laramie at laura10laramie@yahoo.com.

7/18/2015--Amusement Park Gathering - Tyrone, PA
Join the TS Alliance in Central Pennsylvania for a gathering at Del Grosso’s Amusement Park! 12 – 3 p.m. Lunch will be provided. RSVP to Julie for tickets at juliebr10@yahoo.com or 814-937-0598.

7/25/2015--Cure for Cauy - St. Louis, MO
Join the TS Alliance of St. Louis/Southern IL for the sixth annual Cure for Cauy baseball game! The Cardinals vs. Braves game begins at 6:15. RSVP to John Wendling at jwendling300@gmail.com or 314-546-8627.

7/25/2015--Community Gathering - Bellows Beach, HI
Join the TS Alliance of Hawaii for a gathering at Bellows Beach from 12-5 p.m.! Lunch will be provided. RSVP to Trisha Kam at trisha.kam457@gmail.com or 808- 398-8786.

August 2015

8/18/2015--Amusement Park Gathering - Farmingdale, NY
Join the TS Alliance of New York and Jersey at Adventureland starting at 5 pm. We'll spend a nice summer evening at the amusement park and you can meet other local TSC families and individuals.  For travel by train, visit www.mta.com; the Ronkonkoma and Pinelawn stops are nearby. Please RSVP to Cindy Hammerquist at cindlequist@gmail.com or 917-755-4582 to reserve tickets.

September 2015

9/10/2015--2015 International TSC Research Conference - Windsor, UK
The 2015 International Research Conference on Tuberous Sclerosis Complex: From Treatment to Prevention will be held September 10-12 at the Mercure Windsor Castle Hotel in Windsor, UK.  Click here for more information.

9/11/2015--Camp Prime Time - Yakima, WA
Join the TS Alliance of the Pacific Northwest for a camping trip at Camp Prime Time from September 11-13, 2015! You won’t want to miss out on the campfire sing-alongs, marshmallow roasting, pontoon rides, a tree house and more! Everything is handicap accessible. Bring your family and spend the weekend getting to know other individuals and families affected by TSC. Cost is $25 per family and includes meals and lodging. Download the flyer for more details.

9/12/2015--Step Forward to Cure TSC - Auburndale, MA
Join the TS Alliance of New England for the annual Step Forward to Cure TSC to be held at Auburndale Park in Auburndale, MA.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Stacie Verrill at kscverrill@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

9/19/2015--Step Forward to Cure TSC – Wantagh, NY
Join the TS Alliance of New York and New Jersey for the annual Step Forward to Cure TSC to be held at Wantagh Park in Wantagh, NY. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Rob and Denise Spear at rspear96@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

9/26/2015--Regional TSC Conference - Winston-Salem, NC
Join the TS Alliance of the Carolinas for a Regional TSC Conference at the Wake Forest Baptist Medical Center Tuberous Sclerosis Clinic.  For more information and to register, please visit www.tsalliance.org/conferences.

9/26/2015--Step Forward to Cure TSC - Houston, TX
Join the TS Alliance of Houston for the annual Step Forward to Cure TSC to be held at MacGregor Park in Houston, TX. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Bill and Taska Fields at tfields54@msn.com. For more details, visit www.StepForwardtoCureTSC.org.

9/26/2015--Step Forward to Cure TSC - Hilton Head, SC
Join the TS Alliance of the Carolinas for the annual Step Forward to Cure TSC to be held at Jarvis Creek Park in Hilton Head, SC.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Amy Bredeson at acbredeson@yahoo.com. For more details, visit www.StepForwardtoCureTSC.org.

9/27/2015--Step Forward to Cure TSC - Winston-Salem, NC
Join the TS Alliance of the Carolinas for the annual Step Forward to Cure TSC to be held at Miller Park in Winston-Salem, NC.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Gail Saunders at gsaunders@tsalliance.org. For more details, visit www.StepForwardtoCureTSC.org.

October 2015

10/11/2015--Educational Meeting - Minneapolis, MN
Join the TS Alliance of the Upper Midwest for “Special Needs Planning” from 2-4 p.m. RSVP for complete address to Kari at kaihle@msn.com or 612-281-5759.

10/17/2015--Step Forward to Cure TSC - Salt Lake City, UT
Join the TS Alliance of the Intermountain West for the annual Step Forward to Cure TSC to be held at Liberty Park in Salt Lake City, UT.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Alisa Lambros at lambrose.alisa@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

10/17/2015--Step Forward to Cure TSC – St. Louis, MO

Join the TS Alliance of St. Louis and Southern Illinois for the annual Step Forward to Cure TSC to be held at Cliff Cave Park in St. Louis, MO. If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Gwen Montaigne at tawanda1951@yahoo.com. For more details, visit www.StepForwardtoCureTSC.org.

 

10/17/2015--Step Forward to Cure TSC – Collierville, TN
Join the TS Alliance of Tennessee for the annual Step Forward to Cure TSC to be held at H.W. Cox Park. We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Brittany Schwaigert at bschwaigert23@yahoo.com. For more details, visit www.StepForwardtoCureTSC.org.

10/17/2015--Step Forward to Cure TSC – Clark, NJ
Join the TS Alliance of New York and New Jersey for the annual Step Forward to Cure TSC to be held at Oak Ridge Park in Clark, NJ.  We are looking forward to an exciting year raising funds to support the goal: a cure for TSC! If you would like to be involved in the planning and organizing or volunteer on walk day, please contact Tresha Bisang at jersey4424@gmail.com. For more details, visit www.StepForwardtoCureTSC.org.

10/24/2015--Town Hall Meeting - St. Louis, MO
Join the TS Alliance of St. Louis and Southern Illinois from 1 to 3 pm for a Town Hall Meeting at Washington University in St. Louis.  Dr. Michael Wong will present "Clinical Research and Infantile Spasms: A Community Call to Action."


 
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Unlock the Cure: The Tipping Point in the Battle Against TSC
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La Esclerosis Tuberosa (Spanish Intro to TSC)
Infantile Spasms & TSC: A Devastating Diagnosis
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