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March 2014 Update

Between March 4-6, more than 80 supporters from across the country (including Community Alliance leaders, board members, staff and other volunteers) participated in our annual March on Capitol Hill by spending a long day visiting legislators to urge them to continue Federal TSC research funding.  Over the course of the week, these tenacious advocates visited a record 300 members of the House of Representatives and 77 Senators.

One major highlight on Wednesday, March 5, occurred when Rep. Michael Fitzpatrick of Pennsylvania made remarks on the floor of the House of Representatives while accompanied by Stephanie Johns, a 7 year old with TSC.  Rep. Fitzpatrick along with Rep. Loretta Sanchez are co-sponsoring the Dear Colleague Letter in the House for the TSC Research Program as part of the Congressionally Directed Medical Research Program at the Department of Defense. View the video below:

Join Our Government Action Team

If you haven't done so, join our Government Action Team now! Also, be sure to visit our Outreach Toolkit for documents to help you schedule your appointments and other helpful items.

Need More Information?

Please contact Katie Smith at (800) 225-6872 or if you have any questions.  We look forward to speaking to you then. 

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