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BOOKS, BROCHURES & BOOKLETS

 
AN INTRODUCTION TO TSC  PDF FILE
The purpose of this brochure is to explain TSC and its variable features; outline some of the commonly needed medical tests; and to help individuals cope with the diagnosis.


UNA INTRODUCCIÓN AL CET  PDF FILE
Complejo de Esclerosis Tuberosa


IN THEIR OWN WORDS:
PERSONAL JOURNEYS WITH TSC
PDF FILE
This booklet was compiled to give readers a glimpse into the lives of ordinary people and families who face the challenges of TSC on a daily basis, whether they are infants, children, teens or adults.
A BASIC INTRODUCTION TO CLINICAL TRIALS PDF FILE
Because participating in a clinical trial is an important personal decision, this brochure offers basic information to help you make an informed decision.
INFANTILE SPASMS & TUBEROUS SCLEROSIS COMPLEX PDF FILE
This brochure describes what you need to know about infantile spasms, signs to look for, what you should do, and more.

THE TSC eBOOK: TURBO & SCOTT ONLINE VERSION
This book explains TSC to children in a fun and easy to read format.


LIVING WITH TUBEROUS SCLEROSIS: STORIES OF LOVE AND HOPE
This book is a unique, direct and compassionate source of information and hope. Families will know they are not alone in their struggles with tuberous sclerosis. It contains 26 biographies, or "stories of love", by parents of mildly affected children to severely affected children, and by six adults with TS.  The book is free for individuals and families who are directly affected by TS. If you are interested in receiving or ordering a copy, please e-mail the TS Alliance at
info@tsalliance.org or call (800) 225-6872.


TUBEROUS SCLEROSIS COMPLEX
This book provides a comprehensive overview of the molecular basis and clinical features of the genetic disorder tuberous sclerosis.  Special focus is placed on novel insights into the signal transduction pathways affected by the disease and genotype phenotype correlations. Existing and potential therapies are also discussed in depth. Order online here.

WAVERLY AND THE BLUE DOLPHINS
Illustrated children's book written by the grandmother of a child with TSC. Purchase online.


THE SWEETEST SOUND: THE MIRACLE OF TAYLOR HESS
This book weaves together a gut-wrenching medical and personal journey, including the Hess families' ups and downs, into a narrative filled with sadness, surprise and sunshine. Mrs. Hess explains how Taylor, a child with TS, has beaten the odds through various medical means to become a bright, happy child.  Complete information is available online. Part of the proceeds benefit the Tuberous Sclerosis Alliance.


 
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    A message from Julianne Moore     Infantile Spasms & TSC: A Devastating Diagnosis     La Esclerosis Tuberosa (Spanish Intro to TSC)


ABOUT TSC
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Genetics of TSC

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