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LIFE STAGES GUIDES

The Life Stages Guides were developed by the TS Alliance resource information to individuals with TSC and their families and/or caregivers for many of the non-medical issues frequently experienced from infancy to adulthood. 

You will need Adobe Acrobat Reader to view the PDF documents. Click here to go to Adobe's Web site to download a free version of Adobe Acrobat Reader.



The Early Years Guide of the Life Stages Program (ages 0-5) 



The School Years Guide of the Life Stages Program (ages 6-13) 



The Young Adult Guide of the Life Stages Program (ages 14-21) 



The Adult Years Guide of the Life Stages Program (ages 21 and above)

Personal Journals

Because the treatment of tuberous sclerosis complex may involve a variety of healthcare professionals, it is very useful to have a working system to track ongoing medical care and treatment. These journals were specifically designed to provide you with an organized way of keeping accurate records of medications, procedures, appointments, therapies, surgeries, tests and manifestations.

TUBEROUS SCLEROSIS COMPLEX ADULT JOURNAL PDF FILE
An organizational diary for care and treatment

TUBEROUS SCLEROSIS JOURNAL  PHASE II  PDF File

TUBEROUS SCLEROSIS JOURNAL  PHASE I  PDF File

If you are interested in ordering a copy or are unable to download the PDF versions, please e-mail the TS Alliance at info@tsalliance.org or call (800) 225-6872. These are FREE journals, one per TSC individual. There will be a $20 shipping fee.


 
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Unlock the Cure: The Tipping Point in the Battle Against TSC
Tuberous Sclerosis Alliance Overview
La Esclerosis Tuberosa (Spanish Intro to TSC)
Infantile Spasms & TSC: A Devastating Diagnosis
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