Skip Navigation Links
Text Size


The Tuberous Sclerosis Alliance Board of Directors have general oversight, fiduciary, policy development and ambassadorial responsibilities. The board develops and approves strategic plans that define the framework that guides the TS Alliance staff in daily activities, which move the organization closer to achieving its mission.

Decision-making is led by the Executive Committee, which is composed of the Chair, Vice Chair (Chair Elect), Secretary, Treasurer, Immediate Past Chairman and the organization's President & CEO.  Other committees include Finance, Audit, Outreach, Governance, Compensation, Government Relations, Science/Medical and Fund Development.

David Fitzmaurice, Chair
Wyckoff, NJ 

Timothy Dills, Vice Chair
Great Falls, VA 

Beth Dean, Secretary 
Chicago, IL

Darren Miles, Treasurer 
Minneapolis, MN

Laura Lubbers, PhD, Immediate Past Chair
Perkasie, PA

Rebecca Anhang Price, PhD 
Chevy Chase, MD

Martina Bebin, MD, MPA
Athens, AL

John Bissler, MD
Memphis, TN

Michael Caggiano 
Washington, DC

Cassandra Carroll
Oakland, CA

April Cooper 
Irvine, CA

Bonnie Hogue Duffy
Chevy Chase, MD

Keith Hall
East Lyme, CT

Jim Maginn
Manhatten Beach, CA

Brendan Manning, PhD
Boston, MA

Ted Mastroianni
Washington, DC

David Michaels
Scarsdale, NY

Debora Moritz
Scottsdale, AZ

Matthew Simonian
Houston, TX

  Skip Navigation Links
Find a Local Branch
Find a Global Alliance
Become a Volunteer
Become a Member
Government Outreach
Connect With Others
Ways to Give
Your Impact
Facebook YouTube Google+ Twitter TSAlliance Support Linkedin Instagram
Make a Donation to the Tuberous Sclerosis Alliance

Your Journey with TSC: You Are Not Alone
Tuberous Sclerosis Alliance Overview
La Esclerosis Tuberosa (Spanish Intro to TSC)

What is TSC?
How is TSC Diagnosed?
Signs of TSC
Genetics of TSC

Living with TSC
Family Support
Adult Resources

TSC Connect
Brochures & Booklets
Information Sheets
Life Stages Guides & Personal Journals

Perspective Magazine Archives
TSC Clinics

TS Alliance Grants Program
Other TSC Funding Opportunities
TSC Alert Newsletter Archives
Clinical Trials
TSC Natural History Database
Research Resources
International Scientific Advisory Board

Tuberous Sclerosis Alliance Online CommunityTuberous Sclerosis Alliance Support Community  

Great NonProfits 2016 National Organization for Rare Disorders Rare Disease Report GuideStar Exchange Gold Participant The Arc Combined Federal Campaign