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The Tuberous Sclerosis Alliance Board of Directors have general oversight, fiduciary, policy development and ambassadorial responsibilities. The board develops and approves strategic plans that define the framework that guides the TS Alliance staff in daily activities, which move the organization closer to achieving its mission.

Decision-making is led by the Executive Committee, which is composed of the Chair, Vice Chair (Chair Elect), Secretary, Treasurer, Immediate Past Chairman and the organization's President & CEO.  Other committees include Finance, Audit, Outreach, Governance, Compensation, Government Relations, Science/Medical and Fund Development.

Keith Hall, Chair
East Lyme, CT

Laura Lubbers, PhD, Vice Chair
Perkasie, PA

David Michaels, Treasurer
Scarsdale, NY

David Fitzmaurice, Secretary
Wyckoff, NJ

Matt Bolger, Immediate Past Chair
Lansing, MI

Martina Bebin, MD, MPA
Athens, AL

John Bissler, MD
Memphis, TN

Julie Blum
Potomac, MD

Rita DiDomenico
Staten Island, NY

Reiko Donato
Roswell, GA

Steven Goldstein
Westport, CT

Linda Jackson
Miami Beach, FL

Brendan Manning, PhD
Boston, MA

Celia Mastbaum
Marlboro, NJ

Ted Mastroianni
Washington, DC

Darren Miles
Minneapolis, MN

Debora Moritz
Scottsdale, AZ

John Nicholson, MD, MBA
Greenwich, CT

Courtney O'Malley
New York, NY

David Parkes
Fairfield, CT

Rebecca Anhang Price, PhD 
Chevy Chase, MD

Henry Shapiro
Santa Monica, CA

Judith Shoulak
Corcoran, MN

Elizabeth Thiele, MD, PhD
Newton, MA

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