The following publications are useful both for healthcare professionals and the individuals with TSC they treat.
DIAGNOSIS, SURVEILLANCE AND MANAGEMENT OF INDIVIDUALS
WITH TUBEROUS SCLEROSIS COMPLEX PDF FILE
This publication for healthcare professionals details the diagnosis of TSC, describes the genetics of TSC as well as the manifestations seen in each organ system, and provides the recommended screening and follow-up for individuals with TSC. UPDATED 2014.
Applying the Lessons of Tuberous Sclerosis Complex: The 2015 Hower Award Lecture, E. Steve Roach, MD
TS ALLIANCE INFORMATION SHEETS
TS Alliance Information Sheets provide resources for additional information about tuberous sclerosis complex, both for anyone affected by TSC and various physicians and other healthcare professionals.
AN INTRODUCTION TO TSC PDF FILE
This comprehensive brochure helps explain TSC and its variable features, outlines diagnostic criteria and commonly needed medical tests, and provices an overview of TS Alliance services and mission.
UNA INTRODUCCIÓN AL CET PDF FILE
Complejo de Esclerosis Tuberosa
IN THEIR OWN WORDS:
PERSONAL JOURNEYS WITH TSC PDF FILE
This booklet was compiled to give readers a glimpse into the lives of ordinary people and families who face the challenges of TSC on a daily basis, whether they are infants, children, teens or adults.