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The Tuberous Sclerosis Alliance (TS Alliance) endeavors to stimulate, support and coordinate research that will lead to a cure for tuberous sclerosis complex (TSC), while improving the lives of those affected.  A recent white paper describes the impressive scientific progress in the field and highlights key TSC research needs for the future.

The TS Alliance has funded nearly $18 million in research on TSC since 1984. The TS Alliance Grants Program funds research focused on TSC with priorities set by the researchers together with the TS Alliance.  Collaborations between basic and clinical researchers are encouraged and fostered, and the TS Alliance works constantly to increase funding for research on TSC.

Researchers funded by the TS Alliance have a strong history of obtaining additional funding: between 1984 and 2013, principal investigators who received a total of $17.3 million from the TS Alliance subsequently garnered an additional $190 million from the NIH for TSC-related research and $8.6 million from the Department of Defense’s Congressionally Directed Medical Research Program.

TS Alliance Research Grants Program

The 2014 cycle has been completed.  The TS Alliance Board of Directors voted on October 24, 2014, to award a total of $500,000 over two years to four applicants.  After the grant contracts are in place, the 2014 awardees will be posted on our Currently Funded Grant Awards page. A new call for proposals for the Rothberg Courage Award will be posted no later than December 20, 2014.  A list of past recipients and a brief description of the program are posted on our Rothberg Courage Award page.

A call for proposals for the TS Alliance 2015 Research Grants Program will be posted on this page no later than April 30, 2015.

TS Alliance Indirect Costs Policy

For research grants, including postdoctoral fellowships and Rothberg Courage Awards, the TS Alliance allows no more than 10 percent of the total costs to be applied to indirect costs.  As an example, a maximum of $15,000 indirect costs may be included within an award totaling $150,000, of which at least $135,000 must therefore be direct costs. 

The TS Alliance does not pay indirect costs on contracts based on delivering a tangible or measurable work product.  Examples of such contracts are those to enter data into the TSC Natural History Database.

Related TS Alliance Resources

For Related Inquiries, Contact:

Katie Smith  
Manager, Research and Global Affairs
Tuberous Sclerosis Alliance  
801 Roeder Road, Suite 750  
Silver Spring, MD  20910  
Telephone:  1-800-225-6872 or 240-638-4646


Steve Roberds, PhD   
Chief Scientific Officer
Tuberous Sclerosis Alliance  
801 Roeder Road, Suite 750  
Silver Spring, MD  20910  
Telephone:  1-800-225-6872 or 301-562-9890 ext. 225  

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