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 RESOURCES FOR ADULTS WITH TSC


About the TS Alliance Adult Initiative

Read the TS Alliance's Adult Initiative Plan.

Adult Regional Coordinators

If you want to connect to another adult with TSC, please contact an Adult Regional Coordinator in your area.

Free Adult Informational Calls

Are you an independent or semi-independent adult with TSC? If so, please join us for our free informational calls.  

If you have questions or would like to receive handouts (if available) before each call, contact Dena Hook at dhook@tsalliance.org or (800) 225-6872.

To participate in any of the following free informational calls, use the toll-free call in number: 1-866-613-5223 then enter access code: 4334003#.  Each call's length is one hour starting at 8 p.m. Eastern, 7 p.m. Central, 6 p.m. Mountain, 5 p.m. Pacific.

  • April 10, 2014: Nutrition and TSC, presented by Courtney Schnabel Glick, MS, RD, CDN; NY Comprehensive Epilepsy Center
  • May 15, 2014: The Myths and Facts of Social Media, presented by Brian Loew, Founder and CEO of Inspire (the TS Alliance's online discussion group partner)  
  • June 19, 2014: The Process for Improving Future Outcomes, presented by Dr. Steve Roberds, TS Alliance Chief Scientific Officer, and JoAnne Nakagawa, TS Alliance Director of Clinical Projects and Clinic Liaison  

Additional Resources for Adults with TSC


 
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