Skip Navigation Links
Text Size


About the TS Alliance Adult Initiative

Read the TS Alliance's Adult Initiative Plan.

Adult Regional Coordinators

If you want to connect to another adult with TSC, please contact an Adult Regional Coordinator in your area.

Free Adult Informational Calls

Are you an independent or semi-independent adult with TSC? If so, please join us for our free informational calls.  

If you have questions or would like to receive handouts (if available) before each call, contact Dena Hook at or (800) 225-6872.

To participate in any of the following free informational calls, use the toll-free call in number: 1-866-613-5223 then enter access code: 4334003#.  Each call's length is one hour. Please note the time zones and start times.  These are regional calls but anyone across the country can call in.

  • Thursday, October 27, 2016: "Epilepsy in Adults with TSC," presented by Dr. Orrin Devinsky. 8 pm Eastern, 7 pm Central, 6 pm Mountain, 5 pm Pacific  Hear the Recording 
  • Wednesday, November 16, 2016: "Open Forum" hosted by Adult Task Force members. 8 pm Eastern, 7 pm Central, 6 pm Mountain, 5 pm Pacific

Past Topic Call Notes

Additional Resources for Adults with TSC

  Skip Navigation Links
Find a Local Branch
Find a Global Alliance
Become a Volunteer
Become a Member
Government Outreach
Connect With Others
Ways to Give
Your Impact
Facebook YouTube Google+ Twitter TSAlliance Support Linkedin Instagram
Make a Donation to the Tuberous Sclerosis Alliance

Your Journey with TSC: You Are Not Alone
Tuberous Sclerosis Alliance Overview
La Esclerosis Tuberosa (Spanish Intro to TSC)

What is TSC?
How is TSC Diagnosed?
Signs of TSC
Genetics of TSC

Living with TSC
Family Support
Adult Resources

TSC Connect
Brochures & Booklets
Information Sheets
Life Stages Guides & Personal Journals

Perspective Magazine Archives
TSC Clinics

TS Alliance Grants Program
Other TSC Funding Opportunities
TSC Alert Newsletter Archives
Clinical Trials
TSC Natural History Database
Research Resources
International Scientific Advisory Board

Tuberous Sclerosis Alliance Online CommunityTuberous Sclerosis Alliance Support Community  

Great NonProfits 2016 National Organization for Rare Disorders Rare Disease Report GuideStar Exchange Gold Participant The Arc Combined Federal Campaign