TSC International Website
Living with TSC - Multimedia resource from Massachusetts General Hospital
GeneClinics – Tuberous Sclerosis
National Institute of Neurological Disorders and Stroke: Tuberous Sclerosis
TOUS: CAS TUBEROUS SCLEROSIS (French site)
The Rothberg Institute for Childhood Diseases
mTOR Signaling Pathway & mTOR Inhibition Resource
American Society of Human Genetics
DNA From the Beginning
Genetic Alliance
Genetics Home Reference: Your Guide to Understanding Genetic Conditions
Brain Tumor Resource Guide
Child Neurology Society
Hemispherectomy Foundation
National Institute of Neurological Disorders and Stroke
Neurosurgery at Massachusetts General Hospital/Harvard
Society for Neuroscience
Washington School of Medicine – Department of Neurology
American Epilepsy Society
Cyberonics (medical devices for epilepsy)
Edmonton Epilepsy Association
Epilepsy Foundation of America
Epilepsy Center at Wake Forest University Baptist Medical Center
Epilepsy Life Links (support services through the Northeast Regional Epilepsy Group, Hackensack, NJ)
Epilepsy Ontario
Epilepsy Therapy Project
EYC: The Spot for Young People with Epilepsy
HERO: Human Epilepsy Reseach Opportunities (find and enroll in clinical studies and advance epilepsy research.
General Information on Epilepsy (Epilepsy.com)
International Bureau for Epilepsy
Journal of the International League Against Epilepsy
Lundbeck's Support, Help and Resources for Epilepsy (SHARE)
Seizures – by Robert J. Doman, M.D.
Seizure Tracker (online tool to log and track seizure activity, appointments, and medication schedules)
NYU Comprehensive Epilepsy Center
The EpiCentre
Autism Speaks
Autism – PDD Resources Network
Autism Research Institute
Autism Society of America
Center for the Study of Autism
CDC - Autism Spectrum Disorders
Kennedy Krieger Institute
National Institutes of Mental Health: A Parent's Guide to Autism Spectrum Disorder
The Autism Research Foundation
TSC Autism Center of Excellence Research Network
Cambridge Center for Behavioral Studies
Children & Adults with Attention-Deficit / Hyperactivity Disorder (CHADD)
Kennedy Krieger Institute
National Attention Deficit Disorder Association
National Sleep Foundation
Kidney Cancer Association
National Institute of Diabetes & Digestive & Kidney Diseases
National Kidney Foundation
PKD Foundation
American College of Cardiology
American Heart Association
American Lung Association
LAM Treatment Alliance
LAM Foundation
LAM Action (UK)
Mesothelioma Information
Sirolimus for Lymphangioleiomyomatosis (from MEDscape news; requires free registration)
American Academy of Dermatology
Plastic Surgery Information Services
Dermatology Image Atlas –Johns Hopkins University
National Institutes of Health Clinical Center
American Academy of Family Physicians
American Academy of Pediatrics
Familydoctor.org (health information for the whole family)
Food and Drug Administration
Healthlinks.net
MEDLINE/PubMed (search engine)
Medline Plus: Drugs, Supplements and Herbal Information
National Institutes of Health
The National Alliance for Hispanic Health
University of Texas – Houston Medical Education Information Center
U.S. National Library Of Medicine
www.healthcare.gov
State and National Resources
Brookes Publishing (Family guide books/videos)
Family Village – Disability-Related Resources
Families USA – The Voice for Health Care Consumers
Federal Resource Center for Special Education
Hospital Hotel Guide
Mandy's Farm for Autistic Women
National Easter Seals Society
National Family Caregivers Association
National Sleep Foundation
Medic Alert Foundation United States
National Organization for Rare Diseases (NORD)
PatientTravel.org (Charitable medical air transportation resources)
Peace, Love and Lemonade
School Psychology Resources Online
Side By Side Inc. (This Brookline, Massachusetts group provides supported residential, vocational/educational, social, and therapeutic services for adults with psychiatric or developmental disabilities to live as independently as possible in communities of their choice.)
Special Child (Resource Foundation for Children with Challenges)
Technical Assistance Alliance for Parent Centers
TheArcLink.org (Advice on home and community-based services)
The National Information Center for Children and Youth with Disabilities
Woodbine House (Special Needs Resources)
Top